What Fatigue does to me: On Monday, I took the triplets and a friend school supply shopping and to eat. That took 4 hours and I was worn out. I had planned on one more stop but couldn't make it. Tuesday morning, Mom, the triplets and the friend went up to their new school to get schedules, gym clothes etc.
I feel asleep Tuesday afternoon. Came to a couple of times but did not do some very important things. I had to get up Wed. morning for my dressing change for my mediport. I was too tired to do anything but go back to sleep. I missed my feed bag, fluids and morphine. Morphine slows down the diarrhea but does not completely stop it and anti-diarrhals do zip, nada. My kids did not try to wake me or call my Mom. Gotta teach them that.
I tried to get out of bed Thursday morning. I knew the diarrhea was coming but could get there in time. Major blowout. I called my mom. She came over to help me clean up and to hook me up to my feedbag. I had another major blowout while she was here. I felt like I had been run over by a Mac Truck.
By Thursday evening, I was feeling better after getting my feedbag and other fluids in me. But it took till Friday to come alive. I HATE when the fatigue is so bad that it keeps me from taking care of myself and family. I did make it to a lunch date with two of my best friends. I had some soup broth and iced tea - made me queasy. I lasted as long as I could but knew when to wave the white flag.
I hate being sick. I know my limits and try to only do one thing a week. If I do more it wipes me out.
More later -
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